Search

2023 Sessions

2023 Sessions Search
Search by category

Please email [email protected] if the presentation you are looking for is not available.

Health Equity in Rare Disease

Chair: Stacey Tatroe, MSN, NP MSCN (TwelveStone Health Partners)

In this symposium, we seek to tackle access to care issues that may impact timely diagnosis and treatment of NMOSD from the clinician and patient/caregiver perspective, particularly among underserved communities. We will seek to address not only the barriers to timeline diagnosis, but also address the need for expert care, effective treatments, and how these can impact patient outcomes. Faculty which includes a physician, nurse practitioner, and patient representatives who will present findings from the ASPIRE study group that documents the impact of stress and anxiety among NMOSD patients along their diagnostic journey, as well as insights that describe barriers to timely diagnosis. We will also prioritize discussions that focus on potential solutions to close these gaps.


Health Equity and Rare Diseases-A Patient Perspective

Speaker: Sumaira Ahmed, Founder, Executive Director (The Sumaira Foundation)

VIEW PRESENTATION

Speaker: Benjamin Osborne, MD (Medstar Georgetown University Hospital)

VIEW PRESENTATION

ASPIRE Report on Findings for Improving Health Equity-Challenges and Solutions to Improve Access in Rare Diseases

Speaker: Jacqueline Rosenthal, MD (Andrew C. Carlos Multiple Sclerosis Institute)

VIEW PRESENTATION

Measuring Diversity of Patient in Clinical Trials-Do We Have the Right Measures to Measure the Right Things?

Speaker: Eddilisa Martin, PharmD (M&B Sciences)

VIEW PRESENTATION

CATEGORY:

Mental Health | Symposium

LEVEL:

Basic

CREDIT TYPES AND UNITS:

AAPA: 2.75
ACPE: 2.75
APA: 2.75
AOTA: 2.75
ASWB: 2.75
CME: 2.75
NCPD: 2.75
RD: 2.75